Ataxia Telangiectasia or A-T, Close to Our Hearts

Promoting at a local parade for the 7th A-T Telethon!

In college we participated and produced a 9 hour live broadcast telethon for a disease called Ataxia Telangiectasia (or A-T for short) at our Alma Mater, UW-Oshkosh. This telethon is an amazing accomplishment for us ladies and the tradition at UW-O carries on!

What is A-T?

Ataxia-telangiectasia, or A-T, is a rare genetic disease that attacks children, causing progressive loss of muscle control, immune system problems, and a high rate of cancer. Children with A-T are unable to walk by the age of 10 and rarely live to see their 20’s.

How We Got Involved

Our major wasn’t ever your normal college adventure. After class we went to meeting after meeting, and we worked the weekends on film shoots, TV shows, script writing, and being involved in every organization imaginable. We loved every minute of it. But there was something to be said about the A-T Telethon. This experience went above everything else we had accomplished in college. This was about the kids, their families, and hope.

Painting set pieces at the 6th A-T Telethon

We grew to know many of the families in our area whose children were living with A-T. Some of which were so young their symptoms were barely noticeable, others were wheel chair bound and the affects of the disease had taken a toll on their day-to-day living. As producers, we easily became attached, and the telethon became more than just another project. It became something we knew had to happen. We had to take a part in making sure there was awareness of the disease but also financial support to help work towards finding a cure.

Some of the crew gathered after the broadcast of the 5th A-T Telethon

Some of the crew gathered after the broadcast of the 5th A-T Telethon

It started a few years before our college careers began and continues today with the current Radio-TV-Film students at UW-O. This Saturday marks the 11th Annual A-T Telethon! Most of the people putting on this production are students and ALL of them are doing it for free. No credits, no paychecks, FREE. This is a broadcast that is months in the making and we want to show our support by sharing the telethon with you!

Saturday, February 23rd from 5pm to midnight CST,
check out the 11th A-T Telethon
by clicking
HERE to visit the website
where you can watch the live stream, donate, or view auction items.

We’ve even sent in our own package to be auction off! Since we love our DIY projects and wine related items, we decided to donate some to a good cause! You’ve seen our chalk board wine glasses before, but this time we decided to do a NEW wine cork craft (instead of the bar tray) and make a trivet! We tossed in some OAM swag for good measure.

Our auction item for the 11th A-T Telethon!

Our auction item for the 11th A-T Telethon!

Lastly, we just want to say that this is not a well-know disease, so the A-T Children’s Project doesn’t get the same kind of publicity that other organizations do. That means money is limited. We encourage you to do all that you can to help out these kids and their families. They appreciate anything you can give.

Thank you,
Ali, Bryce, Kyla, & Tosha

Group Photo

To learn more about A-T and the A-T Children’s Project, visit

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10 Comments on “Ataxia Telangiectasia or A-T, Close to Our Hearts”

  1. Randi
    February 22, 2013 at 8:40 am #

    I’ve been tracking the auction items and writing down which ones I’m bidding on. Yours has been officially added to my ‘watch list’ so I can bid on it!! Thanks for the support ladies – I know the special place we all have in our hearts for the telethon.

  2. February 22, 2013 at 9:11 am #

    Thanks Randi! Know that those items were hand made with loooooove!

    But that’s a good idea to make a list ahead of time. Now I’ll have to go through them and make a list of my own!

  3. Dana
    February 22, 2013 at 11:44 am #

    I’m going to bid on your swag too!

  4. February 22, 2013 at 12:11 pm #

    BID WAR!!

  5. February 22, 2013 at 1:08 pm #

    Good call, Randi! Off to look at auction items!

    ❤ to the A-T kids!

  6. Ann Johnston
    February 23, 2013 at 1:02 pm #

    Cool auction item!!! Bidding!!! I made jewelry again!! check it out… Hopefully they have posted it! Last time I checked, it wasn’t there!

    • February 23, 2013 at 1:24 pm #

      I think they have put it up! There was a lot of jewelry listed when I checked last night! You’re always so great about donating to the telethon! Thanks Ann!

  7. February 23, 2013 at 1:12 pm #

    Getting all set up to watch the A-T Telethon again this year. I’ve selected my favorite items to bid on, got the coupon ready to order home-delivered pizza and I am so ready to see some of my favorite A-T families!. WoooHoo! It’s Telethon time again!

  8. February 23, 2013 at 1:25 pm #

    I think a lot of us went through all the items last night and made a BIG list! We’re very excited to get together to watch it!

  9. sheargeniousfashioneasta
    March 2, 2013 at 11:02 am #

    I try to donate each year. Great cause to find a cure. AT Telethon another great way of giving to those in need. Donations, time.
    It is all benificial and helpful. Smiles…

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